Last Night I was at a really positive meeting in Roscommon Town full of people wanting to help, Archie, George & Isaac by getting involved in the Join Our Boys campaign: http://joinourboys.org/
Archie (8), George (4) & Isaac (4) are fun loving adorable boys. They have been diagnosed with Duchenne Muscular Dystrophy (DMD), a progressive and fatal neuromuscular disease that destroys muscle tissue. DMD is typically diagnosed in children between the ages of 3 and 7. It almost exclusively affects boys, causing them to be wheelchair bound, usually between 8 – 12 years of age and leaves them fighting for their lives by their late teens to early twenties. In the Republic of Ireland, at this time there are known to be approximately 110 people living with DMD; the majority of these are under 18 years of age. In the UK, 100 boys a year are born with DMD and 2 boys die each week of the disease, making it one of the world’s biggest genetic killers.
There is a severe lack of funding for research into DMD Internationally. There is no treatment or cure at present…we need to change this. Together we can create awareness of DMD, raise funds to ensure Archie, George and Isaac have the additional resources they require to function; to remain mobile for as long as is possible and to live a life filled with purpose and meaning, despite their physical limitations and find a treatment for Archie, George and Isaac and all the other children affected by DMD in Ireland and the World. Paula and Padraic you are wonderful parents and truly inspiring.
Together we can move mountains!
Join Our Boys Today.